At ADSS we don't just support people with dementia, we also support the professionals who care for them.
Join a team that cares for you!
The Rare Dementia Support Group provides a safe, understanding, and inclusive space for people living with rarer types of dementia — such as Posterior Cortical Atrophy (PCA), Primary Progressive Aphasia (PPA), behavioural variant Frontotemporal Dementia (bvFTD), and other young or atypical dementias — along with their carers and families.
The needs of people living with rarer dementias can differ significantly from those associated with more common types of dementia. Individuals may experience changes in language, visual processing, behaviour, executive function, or personality rather than primarily memory difficulties. Many may also be younger, in employment, or supporting families at the time of diagnosis.
As a Rare Dementia Support Volunteer, you will help create a respectful, informed, and supportive environment where attendees feel understood, valued, and less isolated. You will work alongside staff to ensure the group provides meaningful peer support, practical understanding, and opportunities for shared experience.
You will be part of a team that recognises the unique challenges faced by those affected by rare dementias and champions their right to appropriate support, dignity, and community connection.
Read the full role description here